Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | PreconBlind | 533 | Blindness or a severe vision impairment: | 2020-07-01 - Variable ADDED |
Form 1 | PreconDeaf | 533 | Deafness or a severe hearing impairment: | 2020-07-01 - Variable Added |
Form 1 | PreconPhys | 533 | A condition that substantially limited one or more basic physical activities such as walking, climbing stairs, reaching, lifting or carrying: | 2005-07-01 - Variable Added |
PRE-INJURY CONDITIONS
See subdomain notes
PRE-INJURY CONDITIONS
Definition
The purpose of this variable is to help determine the pre-injury functional level of the Model System participants. This variable was taken from the wording of the Long Form of the 2000 Census, which asks about current function. To meet our needs, this question was revised to ask specifically about the patient’s specific function prior to the TBI regarding:
- Blindness or a severe vision impairment
- Deafness or a severe hearing impairment
- A condition that substantially limited one or more basic physical activities such as walking, climbing stairs, reaching, lifting, or carrying.
Form
[X] Form 1
[ ] Form 2
Source
Pre-Injury History (participant or proxy)
Details
Pre-Injury long-lasting conditions are based on self-report. If participant views as ‘long-lasting’ then code as such.
Alcoholism can be considered a preinjury condition if it interferes with the person’s functioning.
Having glasses/hearing aid does not constitute a severe impairment. If glasses/hearing aid cannot correct the severe vision/hearing impairment, however, then code ‘yes’.
Characteristics
Previously, participants were asked about any preinjury “Blindness, deafness, or a severe vision or hearing impairment” until the questions were split into 2 questions on 7/1/2020 - “Blindness or a severe vision impairment” and “Deafness, or a severe hearing impairment”.
Reference
Questions were taken from the long form of the 2000 census and modified to ask about premorbid function instead of current level of function. (Developed by a group headed by Flora Hammond).
Variable was successfully pilot tested in first quarter 2005.
Variables
Codes and Values
ID | Code | Description |
|---|---|---|
533 | 0 | No |
533 | 1 | Yes |
533 | 66 | Variable Did Not Exist |
533 | 99 | Unknown |
History
Date | Description |
|---|---|
2006-01-01 | Added NOTE : about alcoholism being a premorbid condition. |
2014-10-01 | Added NOTE : Having glasses/hearing aid does not constitute a severe impairment. If glasses/hearing aid cannot correct the severe vision/hearing impairment, however, then code 'yes'. |
2024-07-01 | Added NOTE: Pre-Injury long-lasting conditions are based on self-report. If participant views as ‘long-lasting’ then code as such. |
PRE-INJURY LIMITATIONS
Definition
The purpose of this variable is to help determine the preinjury functional level of the Model System participants. This variable was taken from the wording of the Long Form of the 2000 Census, which asks about current function. To meet our needs, this question was revised to ask specifically about the patient’s difficulty in doing the following activities due to a physical, mental, or emotional condition that has been present for at least 6 months:
- Learning, remembering, or concentrating
- Dressing, bathing, or getting around inside the home
- Going outside the home alone to shop or visit a doctor’s office
- Working at a job or business
Form
[X] Form 1
[ ] Form 2
Source
Pre-Injury History (participant or proxy)
Details
Include effects due to alcoholism.
If respondent asks for clarification of what is meant by “mental and emotional conditions”, the following explanation is acceptable: “Mental conditions affect a person’s ability to think or their intelligence. Examples include learning disabilities, dementia, or intellectual disability. Emotional conditions refer to psychological or psychiatric problems.”
If the participant was not working at the time of injury (e.g. unemployed, retired), code Pre-Injury Limitation -Working at a Job or Business” [PrelimWork] on the basis of estimated difficulty had he/she been working. Probe to determine if, at the time of injury, they had physical, mental, or emotional problems that–if they had been working–would have caused them difficulty and which they had had for the past 6 months. If problems has been present for at least 6 months, then code “Yes”. Otherwise code “No”.
Reference
Questions were taken from the long form of the 2000 census and modified to ask about premorbid function instead of current level of function. (Developed by a group headed by Flora Hammond.)
Variable was successfully pilot tested in first quarter 2005.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | PrelimDress | 534 | Dressing, bathing, or getting around inside the home: | 2005-07-01 - Variable Added |
Form 1 | PrelimLearn | 534 | Learning, remembering, or concentrating: | 2005-07-01 - Variable Added |
Form 1 | PrelimOuthm | 534 | Going outside the home alone to shop or visit a doctor's office: | 2005-07-01 - Variable Added |
Form 1 | PrelimWork | 534 | Working at a job or business: | 2005-07-01 - Variable Added |
Codes and Values
ID | Code | Description |
|---|---|---|
534 | 0 | No |
534 | 1 | Yes |
534 | 66 | Variable Did Not Exist |
534 | 99 | Unknown |
History
Date | Description |
|---|---|
2006-01-01 | Added NOTE : for data collectors to use in clarifying the meaning of "mental or emotional conditions". |
2006-01-01 | Added NOTE : include effects due to alcoholism. |
2006-03-14 | Added NOTE: if the participant was not working at the time of injury (e.g. unemployed, retired), code Pre-Injury Limitation -Working at a Job or Business" (PrelimWork) on the basis of estimated difficulty had he/she been working. |
2006-04-01 | Added NOTE : about coding part d for persons not working at injury. |
2020-09-30 | Changed NOTE : replaced "mental retardation" with "intellectual disability". |